BRAIN INJURY ASSOCIATION OF MARYLAND
  • Home
  • About Us
    • Our Organization
    • Staff & Board Members
    • Membership
  • Events
    • 2025 BIAMD Virtual Town Hall
    • Comprehensive Calendar
    • Send Us Your Event!
  • RESOURCES/EDUCATION
    • Request a Presentation or a Training
    • Brain Injury Wavier Program
    • ABI Supports and Resources
    • Additional TBI Resources
    • Financial Information for ABI Survivors and Families
    • Trainings, Webinars, Studies, and more
    • Your Brain Map
    • Local Resources
    • Legal Resources
    • Vocational Resources
    • Home Safety Resources
    • Planning Now: A Futures and Estate Planning Guidebook
    • A Look At TBI Trust Fund Programs
  • #5ThoughtsFridays
  • Maryland Brain Injury Trust Fund
  • Unmasking Brain Injury 2.0
  • Brain Injury
    • Support Groups >
      • Baltimore Area
      • Northern MD
      • Eastern MD
      • Central MD
      • Montgomery/PG/DC Area
      • Southern MD
      • Western MD
      • Outside Maryland >
        • Delaware
        • West Virginia
      • For Veterans and Families
      • Online Support Groups
    • Understanding Brain Injury >
      • Interactive Brain Map
      • Living With Brain Injury
      • Traumatic Brain Injury
      • Your Brain Map
    • Research
    • BIAMD - Telling Your Story
    • CDC HEADS UP
    • Legal Notices
  • Concussion
    • Maryland Concussion Clinics and Resources
    • Concussion Information for Parents
    • Concussion Information for Athletes
    • Concussion Information for Coaches
    • Counseling After a Concussion
  • Media
    • BIAMD Blog
    • HEADWAY eNewsletter
    • Podcasts
    • Videos
    • BIAMD App is Live!
  • How to Give
  • BIAMD BOARD
  • Donate
    • Matching Gift Programs
    • Automatic Payroll Contribution Campaigns
    • Gifts which can be made without giving money now
  • PCORI Brain Injury Network
  • BIAMD Member Portal
  • #5ThoughtsFridays
  • Legal Notices
  • Filling the Knowledge Gap: Brain Injury Training for Educators
  • Brain Injury Training for Skilled Nursing Facilities
  • Brain Injury Waiver Provider Resource Page
  • Stroke Resources

PCORI Project:
Brain Injury/Mental Health Network

Picture
CLICK HERE TO READ THE ABSTRACT

Patient Centered Research on TBI Psychiatric Problems

The overarching goal of our project funded by the Patient-Centered Outcomes Research Institute (PCORI) was to establish a diverse group of TBI stakeholders and engage them in focus group discussions to:

(1) determine catalysts and challenges in the management of neuropsychiatric symptoms after TBI,

(2) identify various strategies for engaging TBI stakeholders in future research projects and creating a PCOR network

(3) list important TBI neuropsychiatry research topics, and

​(4) determine important policy changes related to neuropsychiatric symptoms after TBI.

In 2018, researchers from Johns Hopkins University in collaboration with the Brain Injury Association of Maryland brought together a diverse group of TBI (Traumatic Brain Injury) stakeholders. They included people with TBI, caregivers involved in the care of people with TBI, non-physician clinicians (such as occupational therapists, physical therapists, speech language therapists, mental health therapists), program coordinators and mental health administrators to discuss TBI mental health research.  The project was funded by Patient-Centered Outcomes Research Institute (PCORI) JUU #7136
Picture

Let's Talk About TBI

CLICK HERE FOR THE INFOGRAPHIC
​The purpose of the discussions was to help shape patient-centered research and policies to better meet the mental health needs of individuals with TBI and their families. The discussion was guided by four main questions.
Picture
CLICK HERE FOR THE INFOGRAPHIC

Maintaining a TBI
​PCOR Network

The TBI PCOR Network would focus on neuropsychiatric treatment outcomes, research and policy changes  that matter most to  persons with TBI. Network members would also include other stakeholders such as caregivers, clinicians, researchers, clinic coordinators, administrators and payers.
 
What are the strategies that can keep a TBI stakeholder group active and invested in TBI mental health care so that patient centered research can continue?
Picture

Needed Policy Changes

CLICK HERE FOR THE INFOGRAPHIC
What are the important and needed policy changes that can be done
to improve TBI mental health care in the US? 
Picture
CLICK HERE FOR WEBINAR
Picture
CLICK HERE FOR SLIDES
Picture

What Brain Injury and Neuropsychiatric Issues should be studied next? 

CLICK HERE FOR THE INFOGRAPHIC
What are the important and needed brain injury and neuropsychiatry issues that need to be researched
to improve TBI mental health care in the US? 
Picture
CLICK HERE TO VIEW ARTICLE

Associations work with PCORI Researchers

The Brain Injury Associations of America's member magazine, The Challenge!, published a two page spread on the work done by the Brain Injury Association of Maryland and Johns Hopkins researchers on the TBI PCOR Network.
​
You'll find the article on Pages 24-25. 

News & Events

March is Brain Injury Awareness Month
#Blue4BrainInjuryMD

Getting Help

  • Brain Injury 101
  • Living with Brain Injury
  • Support Groups
  • Resources
  • Brain Injury Association of America

Get involved

  • ​Donate

The Legal STUFF  

  • Legal Notices

public Policy

  • A Resource Guide for Decision Makers - Violence & Injury Prevention 
  • ​Who are My Elected Officials
  • Track a Maryland Bill during the General Assembly
  • Maryland Traumatic Brain Injury Advisory Board Report 
Address: 2200 Kernan Drive Baltimore, MD 21207
Phone: 1.800.221.6443
Copyright © 2024 Brain Injury Association of Maryland.
​All rights reserved!
Disclaimer: This website is provided for informational purposes only and does not constitute endorsement of treatments, individuals, or programs which appear herein. Any external links on the website are provided for the visitor’s convenience; once you click on any of these links you are leaving the BIAMD website. BIAMD has no control over and is not responsible for the nature, content, and availability of those sites. 

Disclaimer:
"By providing my phone number to “Brain Injury Association of Maryland”, I agree and acknowledge that “Brain Injury Association of Maryland” may send text messages to my wireless phone number for any purpose. Message and data rates may apply. Message frequency will vary, and you will be able to Opt-out by replying “STOP”. For more information on how your data will be handled please see our privacy policy below.

Privacy Policy:
No mobile information will be shared with third parties/affiliates for marketing/promotional purposes. All the above categories exclude text messaging originator opt-in data and consent; this information will not be shared with any third parties.


  • Home
  • About Us
    • Our Organization
    • Staff & Board Members
    • Membership
  • Events
    • 2025 BIAMD Virtual Town Hall
    • Comprehensive Calendar
    • Send Us Your Event!
  • RESOURCES/EDUCATION
    • Request a Presentation or a Training
    • Brain Injury Wavier Program
    • ABI Supports and Resources
    • Additional TBI Resources
    • Financial Information for ABI Survivors and Families
    • Trainings, Webinars, Studies, and more
    • Your Brain Map
    • Local Resources
    • Legal Resources
    • Vocational Resources
    • Home Safety Resources
    • Planning Now: A Futures and Estate Planning Guidebook
    • A Look At TBI Trust Fund Programs
  • #5ThoughtsFridays
  • Maryland Brain Injury Trust Fund
  • Unmasking Brain Injury 2.0
  • Brain Injury
    • Support Groups >
      • Baltimore Area
      • Northern MD
      • Eastern MD
      • Central MD
      • Montgomery/PG/DC Area
      • Southern MD
      • Western MD
      • Outside Maryland >
        • Delaware
        • West Virginia
      • For Veterans and Families
      • Online Support Groups
    • Understanding Brain Injury >
      • Interactive Brain Map
      • Living With Brain Injury
      • Traumatic Brain Injury
      • Your Brain Map
    • Research
    • BIAMD - Telling Your Story
    • CDC HEADS UP
    • Legal Notices
  • Concussion
    • Maryland Concussion Clinics and Resources
    • Concussion Information for Parents
    • Concussion Information for Athletes
    • Concussion Information for Coaches
    • Counseling After a Concussion
  • Media
    • BIAMD Blog
    • HEADWAY eNewsletter
    • Podcasts
    • Videos
    • BIAMD App is Live!
  • How to Give
  • BIAMD BOARD
  • Donate
    • Matching Gift Programs
    • Automatic Payroll Contribution Campaigns
    • Gifts which can be made without giving money now
  • PCORI Brain Injury Network
  • BIAMD Member Portal
  • #5ThoughtsFridays
  • Legal Notices
  • Filling the Knowledge Gap: Brain Injury Training for Educators
  • Brain Injury Training for Skilled Nursing Facilities
  • Brain Injury Waiver Provider Resource Page
  • Stroke Resources