Brain Injury Awareness and Education Resources
Below are a number of resources for professionals as well as for individuals with brain injuries and their families.
TBI Advocacy Organizations
Brain Injury Association of Maryland: 410-448-2924, www.biamd.org.Maryland’s BIAA affiliate offers information and referral services for individuals with brain injury, their families and for professionals. BIAM has a library of information and sponsors an annual conference on topics related to the field of brain injury.
Brain Injury Association of America: 1-800-444-6443,www.biausa.org.The BIAA’s website has information for consumers and professionals concerning brain injury consequences, resources and prevention.
National Association of State Head Injury Administrators. www.nashia.org. 301-656-3500. NASHIA’s efforts are aimed at “assisting state government in promoting partnerships and building systems to meet the needs of individuals with brain injury and their families”. NASHIA offers information on a variety of brain injury related topics including domestic violence, employment and veterans for free. NASHIA also has many publications; CD’s and Webcasts on a variety of brain injury related topics available for purchase.
TBI Research Institutions/Products
Ohio Valley Center for Brain Injury Prevention and Rehabilitation, 614-293-3802, www.ohiovalley.org. The Ohio Valley Center is one of the TBI Model Systems research centers in the country. John Corrigan and his colleagues conduct research and publish on a variety of topics including TBI and substance abuse, domestic violence and employment. The Center’s website provides information and tip sheets appropriate for professionals as well as consumers and families.
National Resource Center for Traumatic Brain Injury http://www.tbinrc.com/ Developed by the Medical College of Virginia and Virginia Commonwealth University. Offers useful articles that are very user friendly, and a catalogue of resources for purchase.
The UAB Home Stimulation Program. Created by the University of Alabama Traumatic Brain Injury Model System. http://main.uab.edu/tbi/show.asp?durki=49377&;site=2988&return=9557.This program offers many activities for use by individuals with brain injuries, their families and theprofessionals who work with them. The activities are designed to help support cognitive skills and can be done in the home setting.
The Mayo Clinic.www.mayo.edu. 507-255-5109. The Mayo Clinic houses one of the TBI Model Systems program and James Malac and his colleagues provide rehabilitation and conduct research in a number of brain injury related areas including employment. Their brain injury guides for families and employers can be obtained by calling the above number or downloaded free of charge from the website.
New York Traumatic Brain Injury Model System, Mount Sinai Medical Center.http://www.mssm.edu/research/centers/traumatic-brain-injury-central/resources. Mount Sinai is one of the TBI Model Systems programs as well as houses the Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions. Wayne Gordon and his colleagues conduct research and provide rehabilitation services in a variety of brain injury focus areas including employment, screening and substance abuse. Fact sheets in the Center’s series Traumatic Research Review, Policy and Practice offer families and professionals a wealth of information and can be downloaded for free from the website.
Health Organizer, https://tbi.mssm.edu/ . This tool, created by researchers at Mount Sinai is designed for individuals with TBI and MS to help organize their health records and personal health information. It is part of a research project, it is free, but users will be monitored as how they use the site, can provide feedback regarding their thoughts on the site and can, if they wish to participate in interviews with the researchers regarding their use of the site.
Virginia Commonwealth University Rehabilitation & Research & Training Center on Workplace Supports and Job Retention. http://www.worksupport.com/resources/listContent.cfm/25/0 Research based information on returning to work after brain injury.
Living with Traumatic Brain Injury, the University of Washington Model TBI Program’s video on living with the consequences of brain injury. http://www.uwtv.org/programs/displayevent.aspx?rID=16143&;fID=4141
The Job Accommodation Network http://www.jan.wvu.edu/media/Brain Injury.html offers useful articles dealing employment after brain injury. Information can be obtained regarding individualized workplace accommodations and strategies that can be used to maximize success on the job. A service of the U.S. Department of Labor’s Office of Disability Employment Policy.
www.headinjury.com. Good resource for memory aides and tips for utilizing strategies to maximize independence at home and in the community. This website is consumer centered and has a number of worksheets available to download for personal use.
Learn Net, http://www.projectlearnet.org/. This website, created by the Brain Injury Association of New York State is geared towards children, parents and teachers to help children with brain injury navigate the classroom. Much of the information provided and strategies suggested are applicable for adults at home, community and work.
Disaboom, http://www.disaboom.com/. Although not specific to brain injury, this website is for individuals with disabilities and covers a variety of topics including parenting with a disability, health and wellness and issues in the news related to living with disability.
Continuing Education and Technology Resources
The Michigan Department of Community Health, Web-Based Brain Injury Training for Professionals. www.mitbitraining.org. This free training consists of 4 modules that take an estimated 30 minutes each to complete. The purpose of the training is twofold, to “ensure service providers understand the range of outcomes” following brain injury and to “improve the ability of service providers to identify and deliver appropriate services for persons with TBI.”
Able data, http:///www.abledata.com/ . An online resource catalogue that lists different types of assistive technology available to help people with all types of disabilities.
Webaim, http://www.webaim.org/simulations/cognitive- this is a site that can be used in staff training. It is a simulation of the effectsof cognitive disabilities. You will be asked to complete simple tasks, but other tasks will get in the way.
Lash and Associates Publishing/Training. www.lapublishing.com. This website offer information primarily on brain injury and children and adolescents. Lash publishes many tip cards and publications on related topics such as school reentry after brain injury. The website does offer some articles that can be downloaded for free, however the majority of the products are for sale.
Military Based Resources
Brainline, www.brainline.org Website funded through the Defense and Veterans Brain Injury Center offers civilians, returning service members with brain injury, families and professionals a variety of information and resources regarding life after brain injury.
Defense and Veterans Brain Injury Center, www.dvbic.org . The Center has put out a Caregivers Manual consisting of 4 modules aimed at educating family members and significant others of returning service members. The first two modules are most relevant to civilian families. Go to: http://www.dvbic.org/Families---Friends/Family-Caregiver-Curriculum.aspx
Americas Heroes at Work http://www.americasheroesatwork.gov/ .This website is created to assist veterans with TBI and PTSD. The site has information about brain injury that can be applied to civilians. It is geared towards potential employers and can be used when educating an employer or potential employers about brain injury. The page dealing with employment supports is very comprehensive and can be found at http://www.americasheroesatwork.gov/resources/factsheets/accommodatingTBI/
Traumatic Brain Injury: The Journey Home. http://www.traumaticbraininjuryatoz.org/Program-Introduction.aspx This site, of the Defense and Veterans Brain Injury Center and is an interactive video with accessibility features (e.g. option to enlarge the print) for families, professionals and individuals with TBI. Offers detailed pictures of the brain with descriptions of each part of the brain’s function.
Domestic Violence Resources
The Northeast Center for Special Care. http://www.northeastcenter.com/links-domestic-violence-and-tbi.htm
The provider of rehabilitation services located in New York State, offers a number of links to resources pertaining to domestic violence and traumatic brain injury on their website.
Alabama Department of Rehabilitation Services, Traumatic Brain Injury and Domestic Violence Project. http://www.rehab.state.al.us/Home/default.aspx?url=/Home/Services/VRS/TBI/Traumatic+Brain+Injury+and+Domestic+Violence/Main . This site contains many training and informational products on the link between domestic violence and traumatic brain injury.
*Compiled by Anastasia Edmonston, Project Director, TBI Project, Maryland Mental Hygiene Administration 2010.
- FREE Online Concussion Training for Coaches from CDC – AAN is a participating organization
- FREE Online Concussion Safety Course for High School and Youth Coaches from the University of Michigan – Endorsed by the AAN
- Card for Coaches and Players: Print out this card created by the AAN and keep it with your athletic gear to help you recognize the signs of concussion.
- Medical Reference Sheet for Coaches
BIAM supports current research on brain injuries, and promotes the findings of doctors and researchers.
Watch the video below to learn more about this exciting new development in brain injury treatments.
Brain injury is unpredictable in its consequences. Brain injury affects who we are, the way we think, act, and feel. It can change everything about us in a matter of seconds. The most important things to remember:
• A person with a brain injury is a person first
• No two brain injuries are exactly the same
• The effects of a brain injury are complex and vary greatly from person to person
• The effects of a brain injury depend on such factors as cause, location, and severity
If you are having trouble finding information, feel free to contact us either via e-mail, or through our toll free Maryland Brain Injury Resource Network at 1-800-221.6443. You are not alone.
1.7 million people sustain a traumatic brain injury (TBI) each year.